Glut1 Deficiency Foundation
Research Ready Series
Dallas
The Glut1 Deficiency Foundation is pleased to offer the new Research Ready Series, a special project to build a strong, patient-centered research foundation and increase research literacy in our community.
goals of the series
- educate the community on the importance of patient-centered outcomes research
- increase research literacy and clinical trial readiness
- help ensure research is focused on the needs and priorities of patients
- strengthen relationships and form new partnerships and collaborations across all stakeholders
event details
The Dallas event will be held in conjunction with the Glut1 Deficiency Summit. The Research Fundamentals training as part of the Research Ready Series will be held during breakouts on the afternoon of June 29th (during the Family Sessions). This training will be approximately 2 hours and will be required in order to take part in the Research Ready Series and be eligible for one of the limited number of participation and/or travel stipends.
Registration and fees for the Dallas Research Ready Series event will be included in the regular registration process for the Glut1 Deficiency Summit, but those who wish to complete the Research Fundamentals training and be eligible for a participation or travel stipend should complete a separate registration just for that part (no fees).
You'll be notified within 5 days whether you've been approved for the participation in the Dallas Research Ready Series event or have been placed on a waiting list. Stipends will be paid after the event when all participation requirements have been met (pre-test, training, post-test, survey).
location
Omni Dallas Downtown
555 South Lamar Street
Dallas, Texas 75202
A room block has been reserved with a discounted rate of $239 nightly as part of our Glut1 Deficiency Summit
- reservations need to be made before May 11th at 5:00 PM in order to get the discount rate
- information needed to make the discount hotel reservations will be provided in the confirmation email you'll receive once you complete registration for the Summit
- hotel discounts are available for all days of the Summit and may be extended for three days before and after based on availability
- registration for both the Summit and the Research Ready Event closes June 12th
agenda
The Dallas event will be held in conjunction with the Glut1 Deficiency Summit. The Research Fundamentals training as part of the Research Ready Series will be held during breakouts on the afternoon of June 29th (during the Family Sessions). This training will be approximately 2 hours and will be required in order to take part in the Research Ready Series and be eligible for one of the limited number of participation and/or travel stipends.
Please see the full agenda for more specific details.
registration
stipends
A limited number of stipends are available, but participation will be open to as many who would like join from any of our stakeholder groups - patients, caregivers, clinicians, researchers, and industry partners - and a stipend is not necessary to take part.
Participation Stipends: $100 for successful completion of either in-person or virtual research fundamentals training
Travel Stipends: $400 for in-person participants requiring travel and hotel accommodations in order to participate
- An individual may receive both a participation and a travel stipend, but only one individual per family is eligible for a travel stipend.
- Travel stipends require staying at the Omni Dallas as part of the discount room block.
- Stipends will be paid upon the successful completion of the training and all related activities (pre-test, post-test, and survey).
- Participants may apply for stipends as part of the Research Ready Series registration process.
- Stipends will be awarded first come-first served based on order of registration/application.
- Participants will be notified of stipend status once they have been allocated and awarded.
- A waiting list will be used as needed in case anyone awarded stipends will not be able to complete the training.
- Individuals from any location are eligible.
- Stipends will be paid via check or PayPal.
This project is partially funded through a Patient- Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (#28926).
The Patient-Centered Outcomes Research Institute® (PCORI®) is an independent, nonprofit organization authorized by federal law in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.
The Glut1 Deficiency Foundation is grateful for this opportunity and for the support from PCORI for this project.