2026 GLUT1 DEFICIENCY
Scientific and Family Summit
We are delighted to share that the next GLUT1 Deficiency Summit - our 12th community convening - will be held in July 2026 in beautiful Asheville, North Carolina. We look forward to welcoming the community for another incredible opportunity to meet, share, and learn alongside each other as we bring together clinicians, researchers, and families to share knowledge, build and strengthen collaborations and connections, drive research progress, improve patient care, and ease burdens.
Summit Goals:
- improve patient care
- support and empower families through connection and community
- amplify the patient voice in research
- share the latest scientific and clinical insights
- foster cross-disciplinary collaborations
- identify critical gaps and strategies to address them
- inspire and attract new researchers and specialists
- engage and unite all stakeholders to drive progress
Summit Details:
Schedule at a Glance:
More details are available at the links below, and a full agenda and schedule will be finalized and shared as we get closer to the date:
Day 1 - Monday, July 13th
- afternoon kickoff
- fun and flexible activities
- special interest group meetings
- exhibits
- interactive cooking & kitchen tips
- evening welcome social
Day 2 - Tuesday, July 14th
- whole group sesssions
- clinical focus with interactive sessions on symptoms, treatments, and strategies
Day 3 - Wednesday, July 15th
- family track and scientific track separate sessions
- closing social
Keep reading for more details on this page, and use the links below to explore even further.
We are sincerely grateful for the overwhelming response to the 2026 GLUT1 Deficiency Scientific and Family Summit in Asheville this July. The enthusiasm and excitement from this community mean so much, and we are honored by the strong interest in coming together again.
At this time, we have reached our current capacity of 380 attendees and general registration is now closed.
Registration Info:
Registration Fees: March 16th through June 1st
- people with GLUT1 Deficiency | $49
- siblings | $149
- parents, caregivers, and other family members | $249
- students and post-docs | $249
- professional clinicians and researchers | $299
- industry partners | $399
Registration includes:
Access to all presentation sessions, all social events, the activity room, exhibits, attendee materials, and the following meals:
Day 1: evening social meal
Day 2: lunch
Day 3: lunch and evening social meal
*hotel guests have access to the free breakfast buffet provided by Embassy Suites, which includes keto-friendly options
*detailed information will be provided to registered attendees about menus, socials, and activities closer to the date
A note about capacity:
While this Summit will be held in a smaller venue than our last one, we’re excited about a more intimate experience. Early registration is encouraged in case we reach capacity or fill our discount hotel block.
Activity Room:
- An activity room will be available for use during the full day sessions on Tuesday and Wednesday
- The room will have arts & crafts, games, puzzles, and other activities available
- Some invited guests will be providing entertainment and special activities
- No supervision will be provided
- Attendees who plan to use these activity rooms need to provide their own supervision (see Child Care Provider registration option)
- Only registered attendees with adequate supervision have access to the room
Summit Shirts:
- A special edition commemorative t-shirt has been created for the Summit
- Individuals with GLUT1 Deficiency and their siblings who attend the Summit will get a complimentary shirt as a gift from the G1DF (sizes will be collected from you during the registration process)
- Others may order a shirt to have waiting for you at the registration desk when you check in at the Summit in Asheville
- Shirt prices are set just slightly above cost at $12 and $14
Flash Talks Presentations:
In place of a traditional poster session, the GLUT1 Deficiency Scientific and Family Summit will feature 5-minute flash talks from students, early-career investigators, and researchers new to the GLUT1 Deficiency community.
These talks will take place during the Scientific Sessions on Wednesday, July 15th. Six presenters will be selected via an application process, with travel stipends offered to support full Summit participation.
Flash Talk applications will be accepted through May 1st or until presentation slots are filled.
See our special announcement - We have reached capacity at the venue and are unable to accommodate any additional registrations or flash talk applications.
Venue and Guest Room Info:
The Embassy Suites Downtown Asheville will be the venue for both guest accommodations and the meeting.
- new hotel opened in February 2024
- all guest rooms are suites - mini-fridge, microwave, sink, sitting area with sofa bed
- free hot breakfast for hotel guests with keto-friendly options
- conference room rate of $199 per night
- discounted valet parking of $15 per day
- discounts available through June 15th or until our room block is full
- walkable to over 200 restaurants and shops across downtown Asheville
- two restaurants at the Embassy Suites
- two restaurants at the sister hotel DoubleTree Inn next door
Embassy Suites Asheville Downton - GROUP DISCOUNT BLOCK SOLD OUT
192 Haywood Street
Asheville, North Carolina 28801
OTHER HOTELS:
sister hotel next door:
DoubleTree Inn by Hilton Asheville Downtown - 1 minute (433 feet)
*special booking link is now available for the DoubleTree Inn Hilton at the $199 rate and includes complimentary breakfast and discounted parking at their hotel for our group.
Nearby hotels:
Hotel Indigo Asheville - 2 minute walk (.1 mile)
Cambria Downtown Asheville - 6 minute walk (.3 miles)
Flat Iron Hotel - 6 minute walk (.3 miles)
Haywood Park Hotel - 8 minute walk (.4 miles)
The Restoration Asheville - 8 minute walk (.4 miles)
AC Hotel Downtown Asheville - 12 minute walk (.5 miles)
Windsor Boutique Hotel - 12 minute walk (.5 miles)
Elevation Lofts Hotel - 12 minute walk (.5 miles)
Renaissance Asheville Downtown - 15 minute walk (.6 miles)
Visitor Information:
Tourism:
Asheville is located in the Blue Ridge Mountains and has a number of area destinations and also many in the region.
- Asheville Tourism Information
- Asheville Travel Planning
- Biltmore House - 2.5 miles from hotel
- Blue Ridge Parkway - 5 miles from hotel
- Great Smoky Mountains National Park - 45 minutes away
- Cherokee, North Carolina - 1 hour away
- Pigeon Forge and Gatlinburg, Tennessee - 2 hours away
- Charleston, South Carolina and beaches - 4 hours away
- Savannah, Georgia - 4.5 hours away
- Myrtle Beach, South Carolina - 5 hours away
Airports:
- Asheville Regional Airport - 15 miles
- Greenville/Spartanburg International - 60 miles
- Charlotte Douglas International - 90 miles
Summit Sponsors:
We are grateful for the support of our sponsors and exhibitors, who help make the gathering possible and share important and helpful information and resources with our community.
We'll add additional names as participation is confirmed, and if you are a company, organization, or family interested in sponsoring, please find more details at the link below.
Sponsors and Exhibitors:
