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GLUT1 Glimpses:  The Blog

Find insights and news that matters to the GLUT1 Deficiency community, including events, family features, research snapshots, and special announcements. Find these GLUT1 Glimpses below.

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Our monthly newsletters keep you in the know about what's happening at the G1DF and in the community as we work hard to bring help and hope to patients and families.

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The blog

GLUT1 Glimpses

Next Generation Advocacy

This spring semester, the GLUT1 Deficiency Foundation had the privilege of participating in the inaugural Rare Project Network at the University of Notre Dame. We were especially...
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Resilient Reece

Eleven years after being diagnosed with GLUT1 Deficiency Syndrome, Reece Jones is thriving and his symptoms are mostly controlled.  Prior to his diagnosis in 2015, he had...
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Summit Update and Waitlist for Registration

April 17th Update: Currently at Capacity We are incredibly grateful for the overwhelming response to the 2026 GLUT1 Deficiency Scientific and Family Summit in Asheville this July....
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Growing Together – Gratitude for our Board of Directors

Behind every step forward in the mission of the GLUT1 Deficiency Foundation is a dedicated group of volunteer leaders who give their time, expertise, and heart to...
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Letícia’s Light

Letícia was born in April 2013 in Camaquã, a small city in Rio Grande do Sul, Brazil. From a very young age, her family sensed that something...
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