New Patient Support Programs
The Glut1 Deficiency Foundation is very excited to announce two new programs to offer support services to the patient community.
Glut1 Deficiency is a rare, metabolic condition where glucose transport into the brain is impaired, causing a wide range of neurological symptoms. Ketogenic diets are the current standard of care.
Not all patients have access to ketogenic clinics or high quality ketogenic diet support. The goal of the Keto Care Project is to provide expert ketogenic dietitian care to underserved patients and families.
The Glut1 Deficiency Foundation hopes to help fill these gaps in care by providing virtual access to dietitians for either full support services to families who don’t have a ketogenic diet program at their care center or for one-time consultations to enhance the care they are already receiving.
This is a pilot project through October 2024 with a limited number of appointment spots available. Currently, it is open to anyone who resides anywhere in the United States, and services will be available in both English and Spanish.
An application process will help screen for eligibility and match patients and families with a trained and experienced ketogenic dietitian offering virtual consultation services. The Keto Care Project is a pilot program of the Glut1 Deficiency Foundation with generous support from Baszucki Group, so consultations will be available at no charge to patients and families.
Our hope is that this will be a valuable service for our community that will result in improved care, better symptom management, and enhanced quality of life, and that if successful, it can become a long-term part of the mission programs of the G1DF with expanded services and support to patients outside the United States as well.
Learn more about eligibility and how to apply.
Due to the underlying causes of Glut1 Deficiency, many patients have Intellectual and Developmental Disabilities (IDD), which can affect the ability to learn, reason, problem solve, and adapt and apply social and life skills. This can have a tremendous impact on independence and quality of life.
The goal of the Bright Horizons Project is to provide individualized behavior support services to help better navigate the unique social challenges of this disease, to foster independence skills, and to help build a brighter future for all who live with Glut1 Deficiency.
The G1DF is very pleased to partner with Dana Pottschmidt for this new pilot project. Dana is well-known to our teen and adult community as the host of our monthly virtual Glut1 Gatherings for these age groups and a frequent presenter at our conferences. She’s a Registered Behavior Consultant and will be available for a limited number of virtual sessions to help connect patients and families to information and resources.
The Bright Horizons Projects is a pilot program of the Glut1 Deficiency Foundation and is available at no cost to eligible patients and families. It is open to residents from anywhere in the world, but services will be provided in English. Our hope is that this will prove to be a valuable resource for the community and can be continued past the pilot period.
Learn more about the Bright Horizons project, how to apply, and the types of services and support available.