Updates to Glut1 Gatherings

We’re announcing a few changes to our Glut1 Gatherings program based on some of the feedback we got through the recent community engagement survey and as part of our efforts to better serve the community.

The Parent/Caregiver all ages session is going to follow an alternating schedule now:

One month we’ll meet at our usual 2nd Saturday time at 11:00 AM Eastern, and the next month we’ll meet on the 2nd Monday at 8:00 PM Eastern.  We hope this will give more families the chance to join from more locations at least occasionally at a time that is more convenient for them.

All of these sessions will be an open format for giving and getting support, asking questions, and sharing updates. Any guest speakers the G1DF will feature will be scheduled separately at other times and advertised to the community.

The Hispanic Community sessions will be merged with efforts from the Glut1 advocates in Spain and South America for a collaborative team approach. Those meetings will now take place every other month and will be advertised separately.

We hope you’ll join us for these valuable opportunities to meet others on this journey, share successes and struggles, and learn from and help each other along the way.